Tuesday, 31 October 2017 05:07

NAPWHA's Advocacy Agenda for Ageing

NAPWHA is developing an advocacy agenda for HIV and ageing in recognition of the fact that more than 50% of the people with HIV in Australia will soon be over the age of 50. 

  • The Government is developing an LGBTI Action Plan as part of a new Aged Care Diversity Framework. NAPWHA acknowledges that a number of people living with HIV are also part of the LGBTI communities and is inviting people to contribute to the survey. We are keen to ensure the voices of older people living with HIV are heard in this consultation.
  • This survey will inform the Government about the particular needs of LGBTI communities in Australia, including those with HIV. The Aged Care Sector Committee Diversity Sub-Group will also develop action plans for: Aboriginal and Torres Strait Islander people; and people from Culturally and Linguistically Diverse (CALD backgrounds).
  • The LGBTI Health Alliance is holding in-person consultations across Australia and conducting an online survey to ensure your experiences and wisdom are included. 
  • Contact samantha.edmonds@lgbtihealth.org.au for more information

Ways to get involved:

1.    Click here to participate in the online survey.

2.    Download a print copy of the survey

3.    Download the plain language version of the survey

In-person consultations

1.    Register your interest in one of our in-person consultations

For providers

1.    Download a print copy of the survey

 

 

Published in Latest News
Wednesday, 26 April 2017 07:20

PozQol Survey

The PozQoL Survey is asking People Living with HIV (PLHIV) about quality of life, in order to improve community & health programs in Australia. The survey is run by the Australian Research Centre in Sex, Health and Society (ARCSHS) at La Trobe University. It has been developed in consultation with a variety of community groups and is conducted in partnership with National Association of People with HIV in Australia (NAPWHA) and ViiV Healthcare Australia. They want to hear from PLHIV over the age of 18 in Australia, including people of all genders & sexualities. By completing the survey you will get a chance to win an iPad! Please fill in the online survey before the 15th May - www.pozqol.org.au

Published in Latest News

MEDIA RELEASE

National Day of Women Living with HIV — promoting awareness

Celebrate. Advocate. Inspire. Empower.
 
March 9 will be the second National Day of Women Living with HIV. Coming the day after International Women's Day, this awareness-raising day was created by Femfatales, a network of women living with HIV of the National Association of People with HIV Australia (NAPWHA).

"We are aiming to create a greater awareness of the needs of women living with HIV in Australia, "said Femfatales Chair, Katherine Leane. "It's hard to believe that in 2017 some people don't think that there are women living with HIV in this country. But there are around 3, 000 of us, or about 10 percent of the HIV-positive population."

Because of the perception that women are not at risk of HIV, women don't test for it. Many women who are diagnosed with HIV here have never tested for it previously, not believing they were at risk. This can present them with serious health challenges as a late diagnosis can mean that they have developed a compromised immune system and sometimes, an AIDS-defining illness.

"On top of this, many suburban and regional GPs have never diagnosed someone with HIV, do not always recognise the symptoms or risk factors and are not sure where to refer patients for specialist care. It is very important that women diagnosed in these settings get referred to appropriate medical care and to the peer support agencies that can help people with their diagnoses.

"The more people talk about HIV, the more we encourage women to test for it, the more we will be able to diagnose and treat women appropriately. This is the aim of this special day," said Kath."We encourage all agencies involved with and concerned about women's sexual health to hold a morning or afternoon tea or other event to help raise awareness of HIV agencies that support women living with and affected by HIV."

For more details contact:
Femfatales Convenor, Katherine Leane
0410 707 923
NAPWHA Executive Director, Aaron Cogle
0468 438 214

NAPWHA is Australia's peak non-government organisation representing community-based groups of people living with HIV. NAPWHA provides advocacy, policy, representation, health promotion and outreach at a national level.

Published in Latest News
Friday, 07 October 2016 03:29

PLDi - Who am I as a Leader?

I am very thankful for the opportunity to be a participant in the 2016 October NZ PLDi workshop. As we met at the Auckland city ferry terminal full of expectation mixed with apprehension of the unknown, what the layout and already defying comfort zones of “whats the agenda?”, “how long will it take?”, meeting strangers who throughout the next few days would seem like they had been life friends, I did not anticipate it would be so inspiring, empowering and such a journey of self awareness and development.

Over the course of the next 3 days we were lead by facilitators who lived and breathed the spirit of PLDi through a series of workshops, activities, presentations and discussions. With no agenda given to us. I learnt the valuable lessons of being present in the now and to not over/fore-think activities. Also it amplified the importance as a leader to have a clear vision of an end goal that each step worked towards.

One stand out of the weekend for me was the aspect it was not an instructive/directive workshop, however it was a journey of self discovery. Rather than being told how to be leaders we were encouraged to look with in and I found within the leadership qualities and values I possessed and the style of leader I was. I found this very empowering and also it gave me a greater appreciation for those who were on this journey with me and their distinct leadership qualities, values and styles. The workshop has provided me insight and clarity to who I am as a leader within the PLHIV community, what leadership qualities I possess and self discovery in general about myself, my strengths and amongst all it has installed a greater self belief in myself.

While I had a resilience within I feel through the sharing of experiences and varied personal tools and abilities from other aspiring leaders it has provide me with a greater empathy, understanding and resilience. I look forward to seeing the seeds that I received throughout the PLDi workshop germinate and grow that I can blossom to my fullest potential.

Ryan Oliver
Western Australian NAPHWA Representative

Published in NAPWHA Representatives
Friday, 07 October 2016 03:24

PLDi - Who am I as a Leader?

I am very thankful for the opportunity to be a participant in the 2016 October NZ PLDi workshop. As we met at the Auckland city ferry terminal full of expectation mixed with apprehension of the unknown, what the layout and already defying comfort zones of “whats the agenda?”, “how long will it take?”, meeting strangers who throughout the next few days would seem like they had been life friends, I did not anticipate it would be so inspiring, empowering and such a journey of self awareness and development.

Over the course of the next 3 days we were lead by facilitators who lived and breathed the spirit of PLDi through a series of workshops, activities, presentations and discussions. With no agenda given to us. I learnt the valuable lessons of being present in the now and to not over/fore-think activities. Also it amplified the importance as a leader to have a clear vision of an end goal that each step worked towards.

One stand out of the weekend for me was the aspect it was not an instructive/directive workshop, however it was a journey of self discovery. Rather than being told how to be leaders we were encouraged to look with in and I found within the leadership qualities and values I possessed and the style of leader I was. I found this very empowering and also it gave me a greater appreciation for those who were on this journey with me and their distinct leadership qualities, values and styles. The workshop has provided me insight and clarity to who I am as a leader within the PLHIV community, what leadership qualities I possess and self discovery in general about myself, my strengths and amongst all it has installed a greater self belief in myself.

While I had a resilience within I feel through the sharing of experiences and varied personal tools and abilities from other aspiring leaders it has provide me with a greater empathy, understanding and resilience. I look forward to seeing the seeds that I received throughout the PLDi workshop germinate and grow that I can blossom to my fullest potential.

Ryan Oliver
Western Australian NAPWHA Representative

Published in Conversations
Thursday, 06 October 2016 06:28

Reports of HIV cure are misleading

"The international media have been at it again this week, with claims of an HIV cure thrown around in a sensationalist click-bait fest, amplified through social media channels and networks around the world. As we’ve warned before, these sorts of headlines should be read VERY carefully." HIV Cure website. Read the full article here.

What is the HIV Cure website? Developed by the National Association for People Living with HIV in Australia (NAPWHA) in association with the Doherty Institute and the Alfred Hospital, HIV Cure aims to collate all the latest research news and scientific developments as they happen to educate, engage and gain access to the successes being made.

Published in Latest News
Wednesday, 02 March 2016 03:31

Ryan Oliver

“It is an honour to be one of Western Australia's National Association of People Living with HIV (NAPWHA) representatives for 2016. I am an ambitious, energetic and passionate individual and I take great pride in my honesty and realistic approach to the issues we face as People Living with HIV (PLHIV) and life in general. I have the maturity and ability to understand and appreciate the serious nature of issues and experiences. My bright personality and humour can shed a ray of light on a dark situation.

The battle to fight stigma in the community is one that is real and I believe begins with ourselves, PLHIV. Our solidarity as a community is our strength. I strongly believe in working together as a united body as we can not only stop the ever-growing stigma around this virus but we can also grow, not just as strong individuals but as a community.

2016 marks 8 years since my diagnosis and an unknown time before then since I was infected. I, like some individuals today had a fear of receiving a positive result as it was only through routine pre surgery testing that my positive life began. I believe this fear is fostered through a lack of education and awareness of what it means to be living positively and fear/stigma of becoming positive whether race, gender, sexuality, age and culture.

My previous community involvement in the HIV and GBLTI communities include; voluntary assistance with the New Zealand AIDS Foundation (NZAF) and committee member of a swim team, Different Strokes Wellington (DSW). During my time at DSW we hosted the swim meet for the Asia Pacific Out Games and established the capital swim meet as part of Rainbow Sports weekend.

I am passionate in sharing my story and experience in the hope that taking the time to discuss the issues that we face today will make a difference to others within the community. Born in New Zealand and living in Japan for 5years, I now call Perth home. I embrace my Maori and Kiwi heritage as well as the many cultures of my adopted country. I bring a fresh, energetic and personable approach as one of Western Australia's NAPWHA representatives. My aspirations for NAPWHA are to become a stronger and more positive community solidified by the strength of its supporting individuals.

KIA KAHA – Stand Strong”



Published in NAPWHA Representatives

by Lisa Tomney, Clinical Services Manager PLHIV ComForum2016jpeg

Oh dear, it’s March already!

Hi everyone, with pleasure I introduce the 2016 National Association of People Living with HIV (NAPWHA) representatives for Western Australia, Paul Baines and Ryan Oliver.

I recently met with Paul and Ryan to consider and discuss collaborations and ways to work positively and constructively for People Living with HIV (PLHIV) in WA. The WA Reps are looking forward to working with, and engaging with the diversity of PLHIV to encourage local commitment and passion, and a voice to the national peak body.

The first PLHIV Community Forum for 2016 will be held on Saturday 2nd April and is a great opportunity members of the PLHIV community to meet both Ryan and Paul. To RSVP email wanapwhareps@napwha.org.au or phone Alli at the WA AIDS Council on 9482 0000. 

Meet Ryan
'It is an honour to be one of Western Australia's NAPWHA representatives for 2016...The battle to fight stigma in the community is one that is real and I believe begins with ourselves, PLHIV. Our solidarity as a community is our strength. I strongly believe in working together as a united body as we can not only stop the ever-growing stigma around this virus but we can also grow, not just as strong individuals but as a community...” Find out more about Ryan here.

Meet Paul
As one of the 2015 WA Community Representatives, the past year has been a busy and productive period resulting in various achievements. It has been a privilege to represent the WA community and I welcome the opportunity to continue to do so in 2016. Some of the issues that I feel need continued or further action include broader community engagement, development of a new model of representation for the WA community and auctioning the street appeal on World AIDS Day amongst other things...” Find out more about Paul here.










Published in Latest News
Friday, 29 January 2016 03:50

NAPWHA's new HIV Cure Website is Live

Our friends at the National Association of People with HIV have just launched a new HIV cure website. It's amazing!

See for yourself here.

HIV cure website

 

 

 

Published in Latest News
Wednesday, 19 August 2015 07:01

WA NAPWHA Representatives

Western Australian Representatives @ the National Association of People Living with HIV Australia (NAPWHA) 

NAPWHA is the national peak body for people living with HIV. NAPWHA’s membership consists of a range of PLHIV peer organisations and models of support across Australia.  In WA, the voice of PLHIV into the local and national agenda’s is facilitated through a model consisting of 2 elected representatives within the PLHIV community, and the facilitation of Community Forums for PLHIV to network and liaise on current and future priorities, to communicate to and from NAPWHA.





Published in Living Well with HIV

Our Mission

To minimise the impact and further transmission of HIV, other blood borne viruses and sexually transmissible infections. To reduce social, legal and policy barriers which prevent access to health information and effective support and prevention services.